It can now be announced that AIIMS has marked a global first in pioneering stem cell medicine by the “injection method”, placing the institute right at the top of the world’s medicine map.
This is very exciting news for diabetics and heart transplant patients.
As part of a path breaking study. conducted from February 2003 to January 2005, 35 cardiac patients have been given stem cell treatment and have been monitored at 6, 12 and 18 month intervals.
After six months, 56% of the affected (read dead muscles) area injected with these cells had shown improvement. After eighteen months, this went up to 64%.
With this the long queue of people awaiting a heart transplant can be cut down drastically.
Dr. Venugopal, the man behind this offers a interesting viewpoint:
“Sometimes when I have thought I would see an empty bed, I have seen a patient walk away from the institute on his own. This is important for me.”
Source: The Times of India, Kolkata Edition, Friday, February 25, 2005 [timesofindia.indiatimes.com/articleshow/1031528.cms]
Update:
I have received several queries about AIIMS, cost of treatment etc.
BTW: I am not affiliated with AIIMS in any capacity.
However I took the effort to collect the relevant information for you.
Let me know if you find it useful.
Please refer to the links below for further details on AIIMS.
- AIIMS Indoor Services and Costs [www.aiims.edu/aiims/hosp-serv/citizen-charter/indoor-serv.htm]
- AIIMS location, contact information and other general information [www.aiims.edu/aiims/hosp-serv/citizen-charter/general-inf.htm]
- AIIMS Out-Patient services and Costs [www.aiims.edu/aiims/hosp-serv/citizen-charter/opd-services.htm]
Update: Verghese from AIIMS commented:
its best if u visit the site www.aiims.ac.in and go to the department of neurology site ; details are available there
nothing happens over the phone here… relevant e mails are given there ;contact Dr. Sumit Singh asst prof dept of neurology or Prof Dr. Madhuri Behari HOD neurology who are running the program
Filed under Diabetes, Heart, Muscular Dystrophy, Stem Cell | 135 Comments
AIIMS To Give Proof of Stem Cell ResearchMarch 23rd, 2005 "Positron Emission Tomography is being installed at AIIMS next month, through which we will get the final proof of our work on heart patients. All the patients would be screened for finding how viable our work was and would also study various heart tissues of the patients metabolically," Dr P Venugopal, director AIIMS, said.
"We also plan to inject stem cells directly into the pancreatic arteries of patients suffering from diabetes," he says.
Stem Cell Therapy Successfully Treats Heart Attack in Animals; Patients Enrolled for Phase 1 Clinical TrialJuly 25th, 2005 Results of a study show that stem cell therapy can be used effectively to treat heart attacks in pigs. In just two months, stem cells harvested from another pig’s bone marrow and injected into the animal’s damaged heart restored heart function and repaired damaged heart muscle by 50 percent to 75 percent.
How To Diagnose Muscular DystrophyMarch 22nd, 2006 A muscle biopsy ( a procedure involving the removal and examination of a piece of muscle tissue ) may be the primary test used to confirm the diagnosis. In some cases a DNA test from the blood may be sufficient.
Russian clinics and beauty salons peddling stem cell therapyApril 14th, 2005 While the rest of the world is cautiously experimenting with stem cell therapy, Russian clinics and beauty salons have claimed that they are already using both adult and embryonic stem cells to treat everything from wrinkles to Parkinson's disease to impotence. Scientists warn that while stem cells are still being researched in laboratories, treatment by clinics claiming to use stem cells may cost patients their health and fortunes.
Reliance Life Sciences Files US Patent for Improved Techniques to Harvest Stem Cells from Embryonic and Placental Cord Blood CellsJuly 14th, 2005 In its efforts to usher regenerative medicine in India, Reliance Life Sciences (RLS) has claimed a lead in the race to produce stem cells to repair damaged brains and hearts.
Korean Study Demonstrates Feasibility of Efficiently Harvesting Genetically Identical Stem Cells from Egg DonorsMay 20th, 2005 Korean Scientists lead by Woo Suk Hwang and Shing Yong Moon of Seoul National University in Korea have successfully generated new lines of human embryonic stem cells that are exact genetic matches for individual patients, according to a new study. The researchers derived stem cells from patients with spinal cord injury, a congenital immune disorder and juvenile diabetes.
Stem Cell Research in Heart Disease and Other Ailments at All India Institute of Medical SciencesFebruary 9th, 2007 All India Institute of Medical Sciences, New Delhi, INDIA, have been actively involved in stem cell research in various degenerative disorders. The Stem Cell Facility was established in 2005 to explore the safety, feasibility and the efficacy of autologous hematopoietic and cord blood stem cell transplantation in degenerative diseases.
Stem Cell Research at AIIMS: Future DirectionSeptember 19th, 2005 "For future research, we are looking at all areas -diabetes, muscular dystrophy, cerebral palsy, other neurological disorders and Parkinson's disease. The residual damage after stroke too can be minimised by injecting stem cells," Dr Venugopal, Director of AIIMS said.
March 3rd, 2005 at 11:53 am
Can this treatment be used for a juvenile diabetic? how much will it cost approximately?
March 5th, 2005 at 7:32 pm
pls tell me some thing about myscular distrophy, is the institute pioneer over the total body muscles those are deterioting day by day. i have read some information in times of india dated 26 feb 05 about muscular dystrophy that is being treated.
i m 29 yrs old and suffering from muscular dystrophy, and now my heart going to be enlarge and i m taking medicines for that.
i still didnt believe yet, if it is true then pls tell me some thing abt this so that i can further take some action.
regards
somit arora
March 17th, 2005 at 7:21 pm
@Vidya Sagar
I think you should contact AIIMS in Delhi. I don’t know about the pricing but it shouldn’t be much knowing that it is AIIMS. However getting the opportunity may be time consuming.
@Somit Arora
I am very sorry to hear about your condition. I will reaserch and post some articles on it soon. Do check this blog frequently.
Wish you best of luck.
March 18th, 2005 at 8:14 pm
My heart muscles are 80%dead . I am72 year old . Can stem cell technology pioneered by Dr. Venugopal help me regain my dead muscles. If so whom to contact I am a british citizen.
TARI
March 18th, 2005 at 10:35 pm
Dear Mr. Tari Singh,
Please check their website - http://www.aiims.edu/ [www.aiims.edu]
The contact numbers given are:
TEL : 91-11-26588500, 91-11-26588700, 91-11-26589900
Fax : 91-11-26588663, 91-11-26588641
Mention that you have seen an article in Times of India and give the details. They should be able to point you in the right direction. The article was published in Feb 25th in the Kolkata edition of The Time of India.
See if you can contact Dr. Venugopal. Let me know what happens.
take care,
Angsuman
March 18th, 2005 at 10:45 pm
I have updated the article with actual url to the article - http://timesofindia.indiatimes.com/articleshow/1031528.cms [timesofindia.indiatimes.com/articleshow/1031528.cms]
March 19th, 2005 at 8:30 pm
were stem cell injection used on Multiple sclerosis patient?? if so, what are the results?? are they promissing??
March 19th, 2005 at 10:47 pm
I don’t think multiple sclerosis was discussed in the article. It focussed on heart disease and diabetes.
March 20th, 2005 at 7:42 am
My dad is suffering from cerebeller brain atrophy since the past 5 years. He is currently 5 years old. It started off with losing balance, but now he has a lot of trouble walking without support and he is currently using a walker to help him walk. His speech is also affected, and it is very slurred. Does anyone know if stem cell treatment be helpful for him?
March 20th, 2005 at 7:44 am
sorry..in my last message I meant my dad is 52 years old.
March 22nd, 2005 at 6:48 pm
My Mom is suffering from Diabetes from the past 20 years. She is 73 years old. Her leg is swollen with pus and is about to break. Can the stem cell injection revive the problem of hers?? If so, where to contact and what is pricing for the treatment?
March 22nd, 2005 at 9:20 pm
@K. Meharnath
I think you should immediately visit a nephrologist in your area for your Mother. Also check her urea & creatinine (the neprologist will tell you the same). I am not sure what you mean by swollen with pus. Swelling is normally due to fluid retention. Is she on any diuretic like Lasix?
The treatment mentioned here is conducted by Dr. Venugopal at AIIMS. Please check my comment above for phone numbers of AIIMS. I have no idea of the pricing but I can tell you the waiting list will be long.
You can also look at benfotiamine to reduce diabetic side-effects.
March 22nd, 2005 at 9:24 pm
@Aneesha Sorry for the late reply. I just missed it somehow. I think (not a doctor) stem cell treatment will definitely help him. However the question is where to get it.
Which country are you from? In India AFAIK only AIIMS is leading this research. In other countries you may have better options.
March 22nd, 2005 at 10:23 pm
@Sweet
Please take a look at Using stem cells for multiple sclerosis therapy [www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=15764028] .
Hope that helps…
March 23rd, 2005 at 5:45 am
[...] ,curpg-1.cms”> AIIMS to give proof of stem cell research- The Times of India Related: AIIMS pioneers stem cell in [...]
March 23rd, 2005 at 5:27 pm
Angsuman:
My dad is in Bombay. Should I contact Dr. Venugopal in AIIM? I have already emailed him but got no reply. Is there any other contact you can give me?
Aneesha
March 23rd, 2005 at 8:39 pm
Aneesha: He must be a very busy man these days. Wait for few days and try to contact him over phone.
TEL : 91-11-26588500, 91-11-26588700, 91-11-26589900
Let me know how it goes.
Previously I was able to contact an AIIMS doctor over phone without any problems.
March 25th, 2005 at 4:54 pm
Dear angsuman,
I am a person suffering from depression for the past 15 years. Can stem cell therapy help me? I have received an offer from a biotec firm in USA offering treatment for depression using stem cell therapy.
Kindly respond.
Saji joy
March 27th, 2005 at 8:30 pm
Dear Angsuman,
thanks for your kind co-operation . I will definately try to contact at information provided by you, hope it will work out.
thanks
Tari
March 29th, 2005 at 5:59 am
Dear sir,
Today I happened to go thru your website. I am a diabetic since last 15 years with high blood prtessure, and now my kidneys have been affected requiring dialysis. I would like to know whether stem cell therapy can be used to treat both the pancreas and kidneys. I am taking insulin for diabetes.
Please tell me whether the stem cell therapy is still at an experimental stage or is it an established and safe procedure. Does it require hospitalisation, and for how long?
Thanks and expecting an early response
S. C. Khare
March 29th, 2005 at 3:45 pm
@S.C. Khare
Theoretically yes. Yes it is still an experimental procedure.
Personally I cannot think of any reason why it would be unsafe. For the exact protocol and safety record you should contact AIIMS, details provided in my earlier comments.
@Tari Wish you best of luck. Please let me know how it goes.
March 31st, 2005 at 7:26 pm
my brothers son is a spastic, isthere any hope for spastics thro stem cell treatment, kindly reply.
April 1st, 2005 at 7:06 am
It is an active area of research.
Keep an eye on this blog. I will inform as and when I see something of interest on this topic.
Stem cell has the potential to provide cure for wide array of diseases. What is needed is support by governments in different countries, something which is unfortunately lacking in USA. India however is going forward with stem cell research and so are several other countries.
April 10th, 2005 at 3:39 am
Dear Angsuman,
Hi. I, Hemant (age31) and my brother (prashant age29) from Nagpur are both suffering from Muscular dystrophy from last 12-15 years… I have already emailed & faxed my health history to AIIMS but I am yet to receive any reply. The AIIMS people (on customer service) are unable to provide even the basic information and are just asking patients to fax or email about the patient’s health condition…
I would like to know if the AIIMS currently providing treatment for Muscular Dystrophy ? or is it still in the clinical trial phase? In that case too I would like to participate/volunteer in such clinical trials/ treatment program so how should I approach them? (Dr. Venugopal mentioned to have successfully treated neurological disorders like muscular dystrophy (Ref. 26 feb TOI))
If you can please look into the matter and answer. Please help.
With high Hopes and Regards
Hemant
April 10th, 2005 at 3:46 am
Dear Angsuman,
How can I get information from AIIMS about Muscular Dystrophy treatment (or clinical trial) from concerned autority on TELEPHONE ?
Can you help ?
With regards
Hemant
April 10th, 2005 at 5:52 pm
Dear Sir,
This is in response to the article in The Times of India dated 25-Feb-05, regarding stem cell injection.
Sir, my cousin sister 10 years is having symptoms of Muscular Dystrophy, though she is quite active ,she walks fine,goes to school, plays, she is quite intelligent too.But since her birth one of her calf was quite stiff & tight, she used to walk on her toes , she had difficulty in walking up the stairs.
We have done her CPK test ,the count is also quite high.Currently she is undergoing an Ayurvedic Treatment as Allopathic
could not offer any treatment.We have not done her biopsy as yet, so we don’t know which MD she is suffering from.
Sir, I want to know Is Muscular Dystrophy serious in Girls also as in boys? And can it be cured by injecting stem cells,as one 21- year old Muscular Dystrophy Patient has undergone a stem cell treatment under your supervision.
Sir ,we are desperately looking forward for an appointment with you, my Uncle Aunt are very depressed I wish an appointment with you can answer lot of our queries.
Sir I would be very glad if you could tell me what sort of food she should take, we are giving her protein rich diet, I want to know what all food contents can be added in her diet.
Looking forward for an positive response & appointment.
April 11th, 2005 at 5:43 am
Dear Hemant,
Sorry for the late response.
I think your best bet is to ask for Dr. Venugopal and speak to him directly. Pe polite but persistent till you get through to him. You are the best person to explain your medical condition to him.
Do you have any relatives /friends in Delhi? He/She may be able to track him better and get some one-on-one time with him.
Wish you good luck,
Angsuman
April 11th, 2005 at 5:49 am
To all Muscular Dystrophy patients and their well wishers.
There is an interesting article on the gene therapy approach - Muscular dystrophy cure hope [www.irishhealth.com/?level=4&id=6153] .
DoctorYourself [www.doctoryourself.com/dystrophy.html] offers some nutritional advice on MD. Be sure to check with your doctor before commencing on any self-treatment plan however.
April 11th, 2005 at 6:03 am
Dear Priyanka,
I think you should contact Dr. Venugopal at AIIMS. AIIMS contact numbers are: 91-11-26588500, 91-11-26588700, 91-11-26589900
Request to directly speak to him. If he is not available ask when he will be available. Based on my past experience it shouldn’t be much problem.
Explain your situation in details to him.
Get the actual type diagnosed properly. It never pays to delay treatment of any disease, speaking from hard experience. For some type of MD treatment options are available like for Duchenne Muscular Dystrophy corticosteriod (like wysolone) are offered as guideline for treatment [www.sciencedaily.com/releases/2005/01/050111115101.htm] .
I think you should always go for healthy well-balanced diet [www.muscular-dystrophy.org/information_resources/factsheets/daily_living_issues_factsheets/healthy_eating.html] .
Wish you good luck.
Angsuman
April 11th, 2005 at 6:32 pm
MY MOTHER IS 78 YRS OLD. SHE WAS DIAGONOSED WITH PULSE MISSING WITH THE RESULT PACE MAKER M/C MAKE ‘ELDER’ WAS IMPLANTED IN 1994. REGULAR CHECKS ARE BEING CARRIED OUT AT LARI HEART HOSPITAL AT LUCKNOW. THE LAST CHECK WAS CARRIED OUT IN OCTOBER 2004. PACEMAKER IS PERFORMING WELL AS PER DOCTORS/TECHNICIANS WHO COME FROM KOLKATA.
HOWEVER HER HEART CONDITION IS NOT THAT OK. THE WORKING IS AROUND 35%. SHE HAS GROWN WEAK AND IS TAKING MEDICINES REGULARLY AS PRESCRIBED. MY YOUNGER BROTHER WHO IS CMO IN CGHS TAKES CARE OF HER. PRESENTLY SHE IS HERE WITH ME AND LIKELY TO STAY FOR A FORTNIGHT.
HAVING READ DR VENUGOPAL’S RESEARCH ON STEM CELLS, I WOULD LIKE TO SEEK APPOINTMENT FROM DR. VENUGOPAL FOR MY MOTHER’S TREATMENT. POSSIBLY MY MOTHER REGAINS HER HEALTH SIMILAR TO THE 70 YR OLD MAN WHO WAS TREATED BY DR VENUGOPAL AND IMPROVED HIS HEALTH.
THANKS
WITH REGARDS
ANIL SOOD
EMAIL nisheeth_2004@indiatimes.com [mailto:nisheeth_2004@indiatimes.com]
April 12th, 2005 at 3:29 am
Dear Angsuman,
I would try to reach Dr. Venugopal as and how possible. Thank you.
Can you convey somehow to Dr. Venugopal or any concerned person that I am interested to participate in CLINICAL TRIALS for the good of MD. I too shall try to contact but my only source remains the telephone. Anyway. thanks for all your support and information.
Hemant
hemant_ngp@sancharnet.in [mailto:hemant_ngp@sancharnet.in]
April 13th, 2005 at 11:48 pm
Dear Sir,
I have been going thru your website on matters relating to the Stem Cell research done by Dr. Venugopal at AIIMS expecially in the diabetic cases for juvenile.
I have a sister who is suffering from a diabetic Type 1 condition. She is 15 years old now and has been suffering from this form the age of 8.
Please advice is this new research will be able to help her and is there any other Doctors that I can contact in AIIMS other than Dr Venugopal on this matter. It looks like many will be trying to get hold of him and he will be pretty busy.
April 14th, 2005 at 1:08 am
[...] ents their health and fortunes. The key word is “may”. Experiments so far have indicated positive results in [...]
April 14th, 2005 at 1:44 am
Dear Thanikaimni,
I think the new research will be able to help, provided she gets the opportunity.
You should contact the endocrinology department or ask for any diabetologist on phone.
Let me know how it goes.
Angsuman
April 14th, 2005 at 1:46 am
@Hemant My only source is telephone too.
April 14th, 2005 at 1:47 am
@anil sood Please contact AIIMS directly. I do not have any inside contacts in AIIMS. I have posted the contact information above.
Wish you all good luck.
Keep me updated in this blog if you can.
May 1st, 2005 at 7:28 pm
Dear Angsuman,
This is Rajashekar, and my father (B.Krishnaraj) is suffering of Cerebellar Atrophy for the past two four years and hence he is not able to move on his own and speek porperly. is there any cure for him using STEM CELL INJECTION . pls help us out. he is now 63 years old.
regards
May 1st, 2005 at 8:04 pm
Dear Rajashekar and others,
Please contact Dr. Venugopal at AIIMS for a definite answer to your queries. I have provided the contact information above.
I can see theoritically how stem cell will benefit the condition you mentioned. However there is a difference between theory and practice. I would again implore anyone who is interested in knowing more to directly contact the hospital for further information.
Let me know how it goes.
Regards,
Angsuman
May 4th, 2005 at 7:06 pm
Great to listen from Indian Medical Community about the success of stem cell therapy having infinite potential.
sir, i want to know more about the treatment of mascular dystrophy as one of my family members
(10 yrs old) is suffering from this terminal disease.
May 8th, 2005 at 9:50 pm
MY ONLY SON IS CEREBRAL PALSY
May 8th, 2005 at 9:58 pm
MY ONLY SON IS CEREBRAL PALSY. HE HAD CONGENITAL HEART DISEASE WHICH WAS CURED BY DR DEVI SHETTY IN 1998(AT THE AGE OF 10 MONTHS). BEFORE OPERATION HE HAD RECURRENT CONVULSIONS & AFTER THE OPERATION IT STOPPED FOR 3 YRS. AFTER 3YRS(INTHE YR 2001) HE AGAIN ATTACKED WITH CONVULSION. AFTER THE TREATMENT OF BANGUR NEUROLOGICAL INSTITUTE HE HAS NO COLVULSION TILL NOW BUT HE CAN’T WALK OR SPEAK. DO YOU GUIDE ME HOW TO CONTACT DR VENUGOPAL FOR FURTHER IMPROVEMENT BY STEM STELL TREATMENT
May 8th, 2005 at 10:22 pm
I am very sad to hear about your son.
I think the best way to contact Dr. Venugopal would be through someone (relative or friend) living in New Delhi. If you do not have that facility the next best way is to contact him by phone.
> AFTER 3YRS(INTHE YR 2001) HE AGAIN ATTACKED WITH CONVULSION.
Are you sure the problem was cured in the first place? What does Dr. Shetty say about the recurrence?
Please check AIIMS website - http://www.aiims.edu/ [www.aiims.edu]
AIIMS contact numbers given are:
TEL : 91-11-26588500, 91-11-26588700, 91-11-26589900
Fax : 91-11-26588663, 91-11-26588641
May 20th, 2005 at 7:30 am
[...] st the Senate. With American President Bush’s strong opposition to Stem Cell Research and significant advances made in Stem Cell rese [...]
May 22nd, 2005 at 1:58 am
can stem cell injection treatment be used for diseases like non-specific colitis
the biopsy report is as follows:
microscopic examination:
H & E sections revealed colonic mucosa with lam in a propia showing normal architecture of the crypts infitrated with chronic inflammatory cell like lymphocytes , plasma cells and few eosinophils. no evidence crypt abscess or erythrophagocytosis.
patient suffers from blood nd mucus discharge.
May 22nd, 2005 at 3:26 am
@Parul
Not to my knowledge, at least not yet.
May 25th, 2005 at 2:43 am
hi
i want to know whether u have any idea about stem cell therapy for people having polio? Is AIIMS doing any kind of treatment for this. I have a cousin who had a polio attack at the age of 6, now he is 20. he is paralysed below waist.It would be very kind of u if u can share some news about it
May 25th, 2005 at 5:28 am
@pria
I am just curious. Was he vaccinated?
Unfortunately I am not aware of any “cure” for someone who has already been affected 14 years earlier.
As for AIIMS, I think you should contact them directly.
Wish you best of luck!
May 25th, 2005 at 11:13 pm
hi my husband is a Dr in the indian army,last year in sept he met with an accident due to which he sufered a spinal cord injury with multiple chest and abdominal injuries…but his spinal cord is intact only swollen at a point..but he has lost sensations below the waist..in short he is paraplegic.
I would like to know can he be treated with stem cells and is this treatment available in AIIMS..whom should we contact.He is 26yrs old.
May 26th, 2005 at 5:12 am
> I would like to know can he be treated with stem cells
I believe so. Stem Cells can potentially be used to treat spinal cord injuries. Check this article:
ProCord Trial for Complete Spinal Cord Injury Now Live at Shepherd Center in Atlanta [www.genengnews.com/news/bnitem.aspx?name=536329XSL_NEWSML_TO_NEWSML_WEB.xml]
However I do not know if AIIMS has been experimenting with this.
Please check AIIMS website - http://www.aiims.edu/ [www.aiims.edu]
AIIMS contact numbers given are:
TEL : 91-11-26588500, 91-11-26588700, 91-11-26589900
Fax : 91-11-26588663, 91-11-26588641
May 28th, 2005 at 11:31 pm
Sir
my mother is suffering from ALS for last one year. We have read about stem cell in news paper.
Is there any cure from stem cell
for this diseases.
May 29th, 2005 at 12:03 pm
@Anil Check out this article [www.uwfoundation.wisc.edu/web/www.nsf/allpublished/Stem+cell+research+offers+hope+for+ALS+patients] .
May 31st, 2005 at 7:42 am
REGARDING YOUR QUERY ABOUT MY ONLY SON (ATTACKED WITH CEREBRAL PALSY),I AM TRYING TO GIVE A SHORT HISTORY OF HIS CASE STUDY.HIS OPERATION DT IS 30/4/’98.AFTER THIS HE HAS NO CONVULSION TILL’01 (NOV).AFTER THAT HIS CONVULSION AGAIN STARTED.WE TOOK HIM TO NARAYANAN HRUDAYALAYA(DR SHETTY’S HOSPITAL AT BANGALORE).HE SAID THAT BEFORE OPERATION DUE TO LACK OF OXYGENATION IN HIS BRAIN SOME OF THE CELLS BECAME DAMAGED WHICH MAY CAUSE CONVULSION ANYTIME.AFTER ‘02 HE HAD NO CONVULSION
May 31st, 2005 at 10:02 pm
@Manisha
Have you contacted Dr. Venugopal yet?
June 1st, 2005 at 5:02 am
Hi
I read your article on stem cell and sent a fax to Dr venu gopal for a appointment. My husband has had a heart attack at 35 ,a byepass at 38 ,At the age of 44 a heart failure and had to undergo
complicated angioplasty with 4 stents
He is presently 47yrs, his heart ejection factor
is 28% when last checked .His heart muscles are really week and is also diabetic w insulin 3 times
I live in mumbai and REcd a response vide fax asking to meet any working day on monday/wednesdays /fridays . Do you know if I have to further take appointments or go to hospital and try each day.I really dont know how Aiims works.I want my Husband go in for sten cell treatment as there is no more options
Thank you for sharing these details of stem research
June 1st, 2005 at 8:39 pm
Let me know how it goes.
I think you should try to call him over phone and try to talk to him directly or to anyone in his department. They should be able to guide you about the exact procedure.
June 2nd, 2005 at 10:14 am
Dear sir
Iam suffering from limb gurdall mascular distorphy since last five year.CPK value in my blood is high is their any treatment for this.
June 3rd, 2005 at 5:04 am
HI,
I CAN’T CONTACT HIM DIRECTLY.I CONTACT WITH OTHER DOCTORS BUT AFTER REPEATED REQUEST I CAN’T CONTACT DR VENUGOPAL DIRECTLY. THEY TOLD ME TO GO THERE AS QUICK AS POSSIBLE. BUT I WANT TO KNOW EXACTLY HOW MUCH COSTING IS NEEDED FOR THIS TREATMENT.WILL YOU PLEASE HELP ME IN THIS REGARD?
June 3rd, 2005 at 6:34 am
@Alok
I am not aware of any current cure. http://www.mdausa.org/publications/fa-lgmd-search.html [www.mdausa.org/publications/fa-lgmd-search.html]
provides a broad update on this.
@Manisha
Being a government hospital, it shouldn’t cost much.
Unfortunately I don’t have any personal contact at AIIMS to help you in this regard.
As you know, having political contacts with ruling party officials may give you some leverage in New Delhi.
June 4th, 2005 at 1:42 am
HI,
MY FATHER IS DIABETIC PATIENT SINCE 2004, HE WAS ADMITTED WITH A HYPOGLYCAEMIC ATTACK ON 21ST FEB ‘05. FINAL DIAGNOSIS WAS : DISBETES MELLITUS, LIVER ABSCESS, SEPSIS, HEPATIC FAILURE WITH ENCEPHALOPATHY. COLONOSCOPY REVEALED BLEEDING INTERNAL HAEMORRHOIDS, LARGE COLONIC ULCER. UPPER GI ENDOSCOPY REVEALED GR 2 OESOPHAGEAL VARICES, PORTAL CONGESTIVE GASTROPHTHY, SCLEROTHERAPY WAS DONE. WHETHER THERE IS ANY TREATMENT BY STEM CELL RESEARCH ?
June 4th, 2005 at 4:56 am
@PRITHA
Not that I know of, at least not yet.
Wish you and your Father best of luck!
June 6th, 2005 at 2:17 am
HI,
IF THERE IS NO PROBLEM I’LL VISIT AIIMS NOVEMBER THIS YEAR ALONG WITH MY SON. WILL YOU TELL ME THE ACTUAL LOCATION OF AIIMS? IS THERE ANY GUEST HOUSE OR CHEAP ACCOMODATION FACILITY NEAR AIIMS? IS IT NECESSARY TO FAX ALL THE REPORTS BEFORE CARRYING MY SON TO AIIMS & HOW LONG I HAVE TO STAY THERE FOR TREATMENT?FOR YOUR KIND INFORMATION I HAVE TO MENTION THAT I AM AN EMPLOYEE OF A PVT. ORGANISATION.
June 6th, 2005 at 7:16 am
@Manisha and others
I have updated the article [blog.taragana.com/index.php/archive/aiims-pioneers-stem-cell-injection-for-reviving-heart-muscles] to answer some of the common questions about AIIMS including location, costs, general information etc.
I am unable to help you wrt. finding an accomodation in New Delhi because I have never gone to New Delhi, nor do I have active contacts in New Delhi.
For the rest of your questions you have to contact them directly.
BTW: I am not affiliated with AIIMS in any capacity.
Wish you and your son best of luck.
Best,
Angsuman
June 16th, 2005 at 1:41 am
dear angsuman ,
gayatri is my younger sister ,she is 26 yrs old and she is suffering from duchenne md.she started showing symptoms when she was 6 yrs . now she is completely bed ridden and cannot do anything by herself . we are all desperately looking for the cure for the disease . i was thrilled to hear that research is happening in
india itself .
pls give me details of what is the present status of the research and when can the result be expected.
with high hopes yrs lovingly
brijesh.
June 19th, 2005 at 3:12 pm
did aiims get a result with musculat dystrophy therapy
June 19th, 2005 at 10:01 pm
@Gayatri
I am creating a new website today (been working on it) which will focus on stem cell research. I realized there is a significant interest in Muscular Dystropy and I will cover MD research too. I will post the link later today.
@Jim
Please contact AIIMS directly. I haven’t heard anything further yet.
June 23rd, 2005 at 2:37 pm
Hi
We two brothers are suffering from LGMD since from last 15 years
and our ages are 40 and 45 . The time from when the disease have been
diaganosed to us, we are trying for every possible treatment and Pathies,
but very sad to say that results come to be nil. The condition from one of us
has been reached upto Wheelchair and now we are hopless and tired. We
are totally discouraged and there.s no way of hope in our eyes. Time, Money
as well as health is going on slipping continously from our hands and also
feeling hepless from every where. Always we are hearing that the researches
are going on, Scientists are trying and so and so but upto when ? This
disease is demoralising our lives.
But recently on 25th feb 05 we read a news about Stem Cell research
at AIIMS in Times of India and honestly telling, we were too much glad while
reading the news. There seen a ray in our darkened life. We also give a
hearty congrates to AIIMS. Now we can think about best future and
disease free life becouse of hard work that the scientists have done for us.
We are heartly thankful to you.
Sir, please give information that how we can make use of this treatment or
how we can utilize this treatment for us.? What we have to do for the same?
and how we can get our healthy lives bacK.?
Thanks you !
June 24th, 2005 at 4:37 am
Hi Giriraj and others,
Please wait for a day or two. I am trying to put up a site on stem cell related topics only. So you can remain updated on the latest news and options in stem cell treatment. I hope to be able to accomplish it by this weekend.
Wish you all the best and a happy weekend.
Regards,
Angsuman
June 26th, 2005 at 8:48 pm
Hi
have you spoken to any of the 35 patients that has gone in for the stem cell treatment , their experience would help me a lot.
I just had a family freind who lives in delhi consult a doctor in the cardiac dept of Aiims
they said that the stem cell treatment is only in its clinical trial stages .Do we have any further news other than the initial 35 patients.
You said you are putting together another site
pls let me know how to access it.I have written to you earlier also ,I want to know as much as possible so that I can treat my husband in the best way possible
June 28th, 2005 at 7:56 am
@cecily
> Have you spoken
No, not yet.
> You said you are putting together another site
I am working really hard on it. Give me another day or two please :)
July 5th, 2005 at 7:45 am
G. Shetty,
Looking forward to hear your experiences with Ayurvedic treatment.
July 11th, 2005 at 8:31 am
hi,
i had a fall 3 years ago and i got a spinal injury that made me paraplegic waist down.i’m 25 and i would like to know whether this stem cell treatment can bring me back into a normal life.i live in delhi.so kindly give me some informations how can i get into it.
thanking you
July 11th, 2005 at 9:46 am
@Vishal and other with Spinal Injury please refer to the article - Stem Cell Therapy for Spinal Injury
July 16th, 2005 at 1:51 am
[...] They appear to be working in similar areas as AIIMS, whose pioneer work has been reported here before. [...]
July 17th, 2005 at 11:31 pm
Hello,
My elder brother is having severe heart disfunctioning and we want to take him to AIMS. I heard from someone that Dr. Venugopal has his own website however, I’m unable to locate it. Can someone help me find it. Is there anyway we can get appointment to meet Dr. Venugopal. Any help in this regard would be highly appreciated. Thanks.
Sonal
July 18th, 2005 at 12:00 am
I too am not aware of his personal website. He is the director of AIIMS and a very busy man. Also recently he had a heart surgery which incidentally was done in the hand of junior most doctor in his team at AIIMS.
I think your best best will be to contact the cardiology department at AIIMS.
Here is an article on Dr. Venugopal [www.outlookindia.com/pti_news.asp?id=276452] which you may find interesting.
Wish you all best of luck.
July 18th, 2005 at 11:03 pm
I have been trying to get enough information regarding this procedure, kindly advise me. Thankyou,
Prudhvi
July 21st, 2005 at 8:57 pm
Please call up the Cardiology department of AIIMS (phone nos given in my post above) for whereabouts of Dr. Venugopal.
The procedure should be a simple as giving an injection in the targeted area.
July 25th, 2005 at 10:36 pm
[...] This confirms the results from AIIMS - AIIMS pioneers stem cell injection for reviving heart muscles [...]
August 5th, 2005 at 10:04 am
Hi,
I am suffering from muscular distrophy and i am 24 right now
Can the stem cell Procedure help me in any way please tell me abt it
August 8th, 2005 at 1:46 am
I am suffering from muscular distrophy and i am 24 right now
Can the stem cell Procedure help me in any way please tell me abt it
August 9th, 2005 at 1:55 am
sir i suffer from becker muscular dystrophy past 10 years now my age is 28 . can you have any medicin to cure . i can walk fast but i have troble to calim stairs, runing and jumping
August 11th, 2005 at 7:00 am
Sir my brother suffer from LGMD past two years.Now he is 18.Can you have any medicine to cure.he walk fast but he has trouble to claim stairs ,running and jumping.
August 11th, 2005 at 11:46 pm
Ajay Das and Debabrata,
I try to cover latest cure/treatment related news in Muscular Dystrophy.
Stem cell provides hope for cure for MD patients. You may want to contact AIIMS with your details.
You may like to read:
Chemical ‘Band-aid’ Prevents Heart Failure In Mice With Muscular Dystrophy
Muscular dystrophy heart breakthrough [www.irishhealth.com/?level=4&id=7890]
Will keep an eye to see if there are better news and information on MD.
Best,
Angsuman
September 19th, 2005 at 5:56 am
[...] What happens if the bill is defeated by veto? More and more US citizens will be forced to seek treatment outside of US in countries like China or India. US will permanently lose her edge to stem cell boom countries like Korea, China or India. In the long run everybody loses. [...]
September 20th, 2005 at 3:05 pm
is there any mention of spinal muscular atrophy in any of the stem cell trials which AIIMS plans to conduct. We live in the US and currently US is much behind in stem cell trials due to the political situation. Is there an email for Dr Venugopal where we can contact him with patients diagnosis and details. The AIIMS staff have not been of much help over the phone
Regards
September 20th, 2005 at 8:28 pm
sir
my brother have 29years he is suffering spine and also paraplegia petient before 3years but he have high spastic abdomin and ledge bacelofen pump insert his body but body can not accept if you have any treatment please inform me
thanks
gurgaon
September 21st, 2005 at 11:43 am
Please refer to the Spinal Injury Category for news on Stem Cell Treatment for Spinal Cord injuries.
September 22nd, 2005 at 7:17 am
HI ANGSHUMAN,
IS THERE ANY FURTHER IMPROVEMENT IN STEM CELL RESEARCH REGARDING CEREBRAL PALSY? I CAN’T CONTACT DR VENUGOPAL DIRECTLY. I HAVE MAILED DETAILED INFORMATION REGARDING MY SON BUT CAN’T GET ANY REPLY.
THANKS.
September 22nd, 2005 at 8:23 am
@Manisha
Please refer to the articles from my blog on cerebral palsy.
Also I found that Cord Blood Registry in USA is providing cord blood for cerebral palsy treatments.
Source: PR Newswire [www.prnewswire.com/cgi-bin/stories.pl?ACCT=104&STORY=/www/story/08-22-2005/0004091877&EDATE=]
Hope that helps.
October 28th, 2005 at 1:48 pm
My 54 y/o brother-in-law residing in Bombay has been diagnosed with cerebellar atrophy for last 5 years. The disease has been progressing rapidly. I am concerned about his longivity of life. We are unable to contact Dr Venugopal via phone. I was wondering if could give me better conct number in order to expedite the possible treatment with Stem cell. We are desparate to try this treatment. Please let us know ASAP.
Your help is Greatly appreciated.
Thanks
A. Moghe and family
October 31st, 2005 at 10:12 am
I do not have personal contact with Dr. Venugopal nor do I have better access to information about him then what is available to you by a simple Google search.
I wish you all recovery. I wish I could help more …
November 3rd, 2005 at 1:38 pm
i am working in aiims and happned to see the site .
its best if u visit the site http://www.aiims.ac.in [www.aiims.ac.in] and go to the department of neurology site ; details are available there
nothing happens over the phone here… relevant e mails are given there ;contact Dr. Sumit Singh asst prof dept of neurology or Prof Dr. Madhuri Behari HOD neurology who are running the program
hope this helps
November 5th, 2005 at 4:51 am
my son age 5 yaer muscular dystrophy (cpk - 25000 caunts) pl.injection stem cell
November 5th, 2005 at 5:30 am
@Harsh
Please contact AIIMS by email as suggested by Varghese above.
@Varghese
Thanks a lot for the information
November 16th, 2005 at 3:12 am
sir
please let me know weather this stem cell injection will be use ful in spinal injury at c6-c7 level. My wife was met with an accident in 2000 october 12 and became quadriplegic. please inform me weathe this treatement will help my wife to walk.
November 24th, 2005 at 12:28 pm
I was indeed surprised about this blog. Well you querries about the use of stem cells in Neurological disorders can directly be answered by me as i am taking care of a part of that research myself. contact me on singh_sumit
November 24th, 2005 at 9:12 pm
Dear Dr. Singh,
Thanks a lot on behalf of all patients suffering from diabetes, heart problems and other stem cell treatable diseases for kindly offering to provide information on the research.
I deeply appreciate your kind help on this.
Regards,
Angsuman Chakraborty
November 28th, 2005 at 12:52 am
Dear sir,
My sister’s son has DMD (Muscular Dystrophy). We have new hope for him due the stem cell research. I heard human trials have already been started. i would like him take part in clinical trials. He is 7 years old. So we hope for the best. pls, email me with details. what is the procedure to take part in clinical trials? How can we contact the doctor in charge? Waiting eagerly for your reply. pls, consider this as urgent.
November 28th, 2005 at 3:57 am
@ Priti and Others
Please see the comment above by Dr. Sumit Singh where he has kindly given his email address. You should contact him directly by email.
November 29th, 2005 at 12:08 am
sir i suffer from becker muscular dystrophy past 10 years now my age is 28 . can you have any medicin to cure . i can walk fast but i have troble to calim stairs, runing and jumping .
plzzz reply quickly sir
——————————————————————————–
December 26th, 2005 at 5:49 am
HI,
My Uncle is 35 yrs old . He is suffering with musculur dystrophy.His upper part of the hand and legs is not developed like a original man its very thin . He is not comfortable to sit and not able lift heavy thigs with his hand .
I want to know that how he is cure
December 31st, 2005 at 8:20 am
The research in India at AIIMS is in experimental stages. I think you should directly content Dr. Sumit Singh at AIIMS.
January 19th, 2006 at 9:58 pm
Dear God,Thank you for Dr. Venugopal.I am on my mission to but need connection.I read in India Perspective.I don’t know where the 1st generation started,but the 2nd,3rd and 4th are being ruined by the complications of diabetes.Everybody dies before time.The community needs me and I do not want to die yet till my mission is completed. I also need information on WHo how they can help me
getting funds for my family in Surinam.Thank you
Rosita
January 19th, 2006 at 10:00 pm
thank you for all the great work
January 31st, 2006 at 8:30 am
Hello Dr venugopal
I am the patient of mascular dystrophy and was rejected by the doctors of AIIMS for their stem cells therapy . The reason is my heart at that time is not working properly (i.e. 20%). Now i am almost recovered and wanted that the doctors can treat me. One more thing what is the position of the patients already treated by the doctors. Pls reply me Dr.
March 22nd, 2006 at 5:26 am
hello, i’m facing troubles. i’m getting married soon and i need to do a test to know if i carry the muscular dystrophy desease or not , this desease runs in the family. and i know if i carry it, what are the test required? i know i have a chance of 50% to pass it to my son if i carry this desease. is there any chance to avoide my son of having this desease? or can i change my gene with a good one? or can i do anything to help. plz i’m desperate i need help and i want to save my marriage because this desease affects my fiancee with a huge depression. i’m very keen to have kids not adopted but by nature and if they wont be in absolute helth i don’t want them. i know it’s cruel but i’m a very weak person to accept kids in these conditions. i’m desperate in help. please reply me. thank u.
March 22nd, 2006 at 6:21 am
Please refer to the article - How To Diagnose Muscular Dystrophy.
Hope that helps.
March 22nd, 2006 at 3:48 pm
dear Angsuman chakraborty,
reading the article, how to diagnose muscular dystrophy helped me by knowing the tests i should do. i thank you. although i have so much questions and can’t find answers, i feel really lost. i’m happy cuz at least i had an answer about a thing and i really appreciate it.
thank you.
April 7th, 2006 at 8:17 am
Hey Angsuman,
Man im totally in love with u, dono y but their’s something very divine abt u. Love u loads…
Incase if ur free u can check my website http://sdeepa.pitas.com/ [sdeepa.pitas.com] .
I survive wid the same sick SMA Type II…but i try my best to be active ;)
If u feel i can do something at all for taragana..Im all pepped to work.Im a webdesigner, I learnt all the designing skills
myself ;) self learner.
My latest website was http://www.enable-india.org [www.enable-india.org] .
Its a organisation providing jobs for disabled people.
Companies like IBM, TCS, INFOSYS, Many more leading software companies has joined hands with enable india to a great work force for pwds.
Im updated wid all latest new of stem cell research. Hope the a light of strenght to ppl like us.
Happy Bloggin…Dude
Regards
Deepa.
April 8th, 2006 at 9:15 am
Deepa,
Thanks for your kind wishes and your generous offer for help. I deeply appreciate your gesture.
You could, if you wish, write some articles in the Consanesco and/or Stem cell blog regarding the condition of SMA Type 2 patients. We need to create more awareness with people. I am also creating a forum where people who are suffering from various diseases can communicate with each other and support each other.
I hope and wish that you can avail the benefits of stem cell research to cure your condition.
I wish the very best of luck for you.
BTW: I am amazed ( and very happy) to see the huge amount of work you have done and the websites you have created.
Take care,
Angsuman
April 8th, 2006 at 9:25 am
All,
You may, if you like, personally contact me at
angsuman[at]taragana[dot]net
April 11th, 2006 at 2:01 am
A diet packed with vitamins could help stop muscle wastage
SOMETHING as simple as eating a healthy diet could help people who suffer from a common genetic disorder, according to new research.
Spinal Muscular Atrophy (SMA) is the most common genetic cause of infant mortality worldwide, affecting about 1 in 6000 babies. It causes muscle weakness and wasting, and kills most victims before they are two years old. But many people survive to adulthood, despite the fact that most cases are caused by the same mutation in a single gene.
It had been assumed that the varying fates of those affected were due to other, as yet unknown, genes. But the new research suggests that one factor determining the severity of symptoms could be how much folic acid and vitamin B12 a patient consumes—either through a healthy diet or by taking vitamin pills.
July 3rd, 2006 at 11:18 am
Hi,
My 13 year son Suffering from Mascular dystrophy,
please send me an e-mail address of realted person for discus about treatment of above diseas
Thx
Mehboob Ahmed Balol
July 24th, 2006 at 4:40 am
Hi Angshuman,
I am a sufferer of Multiple Sclerosis. After learning that AIIMS has been able to help MD and Cerebral Palsy patients with stem cell technology, I emailed them but they did not answer. Do you happen to know if they can indeed help an MS patient and whom do I contact and how? I already got the contact details from this site but a specific phone no. will be more helpful.
Regards.
August 19th, 2006 at 5:28 am
19.08.2006
hi,
My wife who is 65 years old is suffering from Parkinson’s disease for last 14 years, Please give me the contact no. or email address of division concerned with treatment of Parkinson’s disease with Stem cells.
August 19th, 2006 at 9:49 am
My nephew is suffering from muscular dystrophy. We were told that there is no cure available. He had carried out some ayurvedic treatment where they do oil massage etc. But its just temporary relief.
Later i came to know of one ayurvedic doctor who is known to cure all sorts of incurable disease. We visited him and now he is under his treatment for the last one and a half months. His CPK value has since come down from 19000 to 11000 in 25 days and now to 2000 in the next 25 days.
We feel there is some improvement.
We hope for the best.
MANI
September 6th, 2006 at 4:12 pm
Dear mani please send me the address of that ayurvedic doctor soon who help in muscular dystrophy. girish_mishra55@rediffmail.com [mailto:girish_mishra55@rediffmail.com] or call 02032503567
September 11th, 2006 at 2:10 am
In Indiana a man over the age of 18 may be arrested for statutory rape if the passenger in his car is not wearing her socks and shoes, and is under the age of 17 borrowing [4betadb-beta.blogspot.com] and money [www.google.com]
September 15th, 2006 at 12:01 pm
dear Angshuman,
my daughter is a Juvenile diabetic since 6 years. She is 19 now. I wish to take an appointment with the diabetologist who is doing stem celll therapy for diabetics. Can I have the name,phone or cell No and E-mail ID of the concerned diabetologist. please furnish me with the above details for which I will be ever grateful.How do I register for clinical trial ?–jayashree
September 21st, 2006 at 2:01 am
My Name is Amit Gupta 26 years old suffering from Muscular dystrophy We have new hope for him due the stem cell research. I heard human trials have already been started. i would like him take part in clinical trials. So we hope for the best. pls, email me with details. what is the procedure to take part in clinical trials? I request to restart therapy for Muscular Dystrophy. Waiting eagerly for your reply. pls, consider this as urgent
October 17th, 2006 at 3:53 am
i have 15 year cerebal palcy boy ,where can i get stem cell treatment, is it cure after treatment, nita from tazania
July 30th, 2007 at 11:30 am
Dear Angshuman,
Please inform if human trials for treatment of LGMD is started in AIIMS. If so please let me know the procedure to register with the institute for admission/treatment
Eagrly waiting for your reply.
August 12th, 2007 at 9:21 am
i am spinal cord injured person at t8 t10 and have some movement in my legs. can anyone guide me to a stem cell therapy in and around delhi as i am from jaipur. i am on a wheelchair
thanks
deep
January 5th, 2008 at 9:31 am
Hi , I am also a patient of M.D (Baker)kind, I am Resedent of PAKISTAN, here we are not that much focused on such treatment. well my age is 24 and i am married , no child yet, finding any hope for the treatment please please if any one nows any progress in the treatment Please do mail me or call me or just sms me in Pakistan, i Would be really thankfull and i saw MR.MANI mentioning a progress i Would like to ask for the details for the treatment his is giving to his nephew so i can visit and first call the doctor. Thanks : Waiting for a possitive responce.Junaid Khan Tanoli. 00923455306661.
August 30th, 2008 at 2:11 am
hi ….i m suffering from muscular dystrophy since last nine years. im not taking any type of treatment now. My biopsy was done for three times but nothing can diagnosed. In the end on the base of family history of lgmd to my step brother it was declared.We also visited stemcell department in AIIMS in 2006. Now I have problem in brisk walking and going upstairs. I can do my work without others help. I m doing exercise daily to keep my body relaxed. I want to know that is there any cure for this so that i can laed a smooth life. now i am Doing CA to be independent. I hope u will consider my querry and send me a mail on my id. thanking you.my contact no is 9988462248.
October 8th, 2008 at 12:33 am
HI,
I’M SUFF’RING FROM MUSC. DYST.SINCE CHILDHOOD,UNABLE TO MOVE,DEPEND ON OTHERS FOR ALL MY DAILY ROUTINE. PLZ SUGGEST ANY HELP.
October 22nd, 2008 at 4:18 am
Hi Angsuman,
God Bless you for guding and helping so many people and giving them hope.
My niece was diaganosed with Spinal Muscular atrophy type1 at 5 months. She has little head control and very little arm and leg movement. She is currently 9 months old and otherwise healthy but recently caught an infection and had pneumonia and is hospitalised. She is very socil and intelligent child and we are dsperately looking for a cure. Pl help and guide if something is possible for her soon.
Warm Regards
Gayatri
December 21st, 2008 at 4:13 am
india is marching forward with new improvements in field of stem cell research and also space.
with new stem cell research many untreated diseases will now come under scanner for treatment.
December 25th, 2008 at 10:44 am
Hi
We two brothers are suffering from LGMD since from last 15 years
and our ages are 40 and 45 . The time from when the disease have been
diaganosed to us, we are trying for every possible treatment and Pathies,
but very sad to say that results come to be nil. The condition from one of us
has been reached upto Wheelchair and now we are hopless and tired. We
are totally discouraged and there.s no way of hope in our eyes. Time, Money
as well as health is going on slipping continously from our hands and also
feeling hepless from every where. Always we are hearing that the researches
are going on, Scientists are trying and so and so but upto when ? This
disease is demoralising our lives.
But recently a news about Stem Cell research
at AIIMS in New chenal and honestly telling, we were too much glad while
reading the news. There seen a ray in our darkened life. We also give a
hearty congrates to AIIMS. Now we can think about best future and
disease free life becouse of hard work that the scientists have done for us.
We are heartly thankful to you.
Sir, please give information that how we can make use of this treatment or
how we can utilize this treatment for us.? What we have to do for the same?
and how we can get our healthy lives bacK.?
Thanks you !
December 30th, 2008 at 12:13 pm
Dear Sir
Please inform if human trials for treatment of LGMD is started in AIIMS. If so please let me know the procedure to register with the institute for admission/treatment
Eagrly waiting for your reply.
January 16th, 2009 at 3:28 am
My Grand Father is a dibetic two patient. He takes 60 unit Insulin daily. He want “Stem Cell Treatment” for his dibetis. Can AIIMS give stem cell treatment, plz Can I have the name,phone or cell No and E-mail ID of the concerned diabetologist. please furnish me with the above details for which I will be ever grateful.How do I register for clinical trial in AIIMS–
Sir You reply me this message
January 17th, 2009 at 8:53 am
Hi Amit,
Please follow the updated links.
Regards
February 6th, 2009 at 7:47 pm
somit is my brother and is still alive in so many hearts on this earth. He is really a genious and brave hearted, always worried about others problem, dont even think and feel that he himself is in problem and suffering with a desease called myscular dystrophy, which kills him slowly slowly.
Chalna kya kya hai wo un se poocho jo chal nai sakte. dekhna kise kehte hai wo un logo se poocho jo dekh nai sakte.
Hopes never dies, and he lived on hopes that good time come when he walk like others, run like others but ——
He is 6 year elder to me and my real brother, i really miss him, we all in our family depends upon him on small small things, now where we go—-
No one watch cricket now, he love to see cricket
I didnt make any friend because i have only one friend who is my brother and now i am alone.
From past 8 years his heart got damaged also, doctor says he had leakage in his walls of heart 2 of them completly damaged and one got leak and noncurable.
you knw, doctor himself give him hanuman chalisa during his last days.
We all miss you and love you goldy– somit.
Somit arora ( 2 june 1975 - 27 july 2008)
March 25th, 2009 at 1:21 pm
Sir,
I have been told that my 8 year child is suffering from Muscular dystrophy.
Can you help me to tell about the stem cell therapy available?
Too keen to hear from you.
April 1st, 2009 at 2:49 pm
Hello!
my brother is 27yrs old and he is diagnoised with mild cerebellar atrophy. please help me with the details of hospital who can save my brother with further detroration…….. please